I had a breakthrough seizure this week. It’s been nearly a year since my last seizure. 11 months actually. The last seizure I had was May 7, 2024.
So frustrating! I mean I know that it doesn’t constantly happen, but it keeps happening! It’s been nearly 12 years since my brain surgery. I’m so thankful that I had the opportunity to have brain surgery because I was having 2-3 seizures a MONTH, and now I’m only having about one a YEAR, but I’m still having one seizure about every year. So frustrating! So disappointing…
Plus post-seizure, the headache is horrendous and can last for a couple of days. This one sure did. Probably a migraine.
Questions I always have to ask myself post-seizure:
Have I missed any meds? I don’t think so.
Am I sleep deprived? No
Have I had any alcohol? No
Have I had too much caffeine? Probably
Am I overly stressed? Have you paid any attention to the news?!
I started having complex/partial seizures when I was 37, so it’s been about 19 years since I first started having seizures, and it never gets easier. It never seems to make sense. Why do meds work for some people but not for others? Why does surgery work for some people but not for others? These are the questions that I keep asking because I had surgery to have my left hippocampus removed (pic below), and I continue to take anti-seizure meds, but I still have occasional breakthrough seizures.
It might only happen once a year, but because you don’t know when it is going to happen, it is making you live with so much uncertainty. It must be hard for you to decide what activities are safe for you to do. If you have to live with this, I just wish you could schedule your annual seizure. Then you could block off three days on your calendar and get it over with! ❤️
ReplyDeleteYou're right, Sandy. Life would be so much easier if I could just schedule it in advance and block it off one my calendar, so I'd know to prep for it and be ready. It's the uncertainty that is stressful. Love you, my friend!
DeleteThankfully, this one happened while you were at home. While irritating, that’s much better than having it in your car or in a crowded parking lot or even at a public gathering. You’ve experienced all of those. This one was much safer for you. I hate those horrid headaches you suffer after a seizure, but I’m so glad the seizures have reduced in number since the surgery. Before surgery was a true nightmare! You are a champion who manages exceptionally well after all you’ve been through. Keep showing the world what you can do!
ReplyDeleteThank you for being such a major part of my support system. You always have been! Love you, dear one!
DeleteThis comes with my love and concern. So sorry you have to deal with this. So glad I can now count you among my friends.
ReplyDeleteThank you!
ReplyDelete